Diagnosed with Systemic Lupus? Here's What to Expect Next

If you've just been diagnosed with systemic lupus erythematosus (SLE), you may be feeling a mix of anxiety, confusion, and relief to have answers. Lupus is a complex autoimmune disease, which means your immune system mistakenly attacks your body’s healthy cells, leading to inflammation and tissue damage. 

This diagnosis may feel overwhelming, but you’re not alone, and there are ways to manage it effectively. Partnering with a rheumatology specialist is the best place to start.

Here at Comprehensive Arthritis Care, in Hendersonville, Tennessee, board-certified rheumatologist Mohammad F. Ali, MD, and our board-certified physician assistant Ari Hardin, PA-C, bring a wealth of experience helping patients with lupus manage their symptoms, and protect their health.

For patients newly diagnosed, knowing what’s next can empower you along the path to feeling in control of your health. 

Understanding your symptoms

Lupus symptoms vary widely from person to person, but there are some common issues. Many people living with lupus report fatigue, and not just tiredness here and there, but a chronic feeling of exhaustion that persists even after rest. You may also experience joint pain, skin rashes (often in areas exposed to sunlight), and fever. 

Lupus is known as a “great imitator” because it mimics other illnesses, which can make diagnosis and treatment challenging. Fortunately, Dr. Ali has extensive experience evaluating for and diagnosing lupus. 

You may also face changes in organ health, particularly with the kidneys, heart, or lungs. Each symptom can range from mild to severe, and your treatment plan focuses on managing these fluctuations.

Developing a treatment plan

The Comprehensive Arthritis Arthritis Care team provides individualized care. Dr. Ali works with you to develop a treatment plan tailored to your needs. 

Medications like nonsteroidal anti-inflammatory drugs (NSAIDs) and corticosteroids help manage pain and inflammation, while antimalarial drugs, such as hydroxychloroquine, can reduce flares and skin symptoms. For those with more severe cases, immunosuppressive drugs may be necessary to curb the immune system's attacks on your body.

Monitoring your condition

Once you begin treatment for lupus, regular monitoring is essential. Dr. Ali will want to see you periodically to assess your symptoms, and determine how well your medications are working. 

Our team may adjust your treatment, as needed, depending on changes in your condition. Blood tests are often part of this process to help monitor your immune system activity and the potential side effects of medication. 

Managing flares

Lupus often comes in waves, with periods of intense symptoms followed by remission. These “flares” can be frustrating, but with the right strategies, you can reduce their frequency and intensity. 

Infusible medications can help quickly control symptoms to provide relief during acute flares. IV infusion therapy can also help reduce the frequency and severity of flare-ups. Treatment takes between 30 minutes and four hours, depending on the specific infusion. During this time, medication is supplied directly to the bloodstream for rapid symptom control.

Identifying your triggers — whether they’re stress, infections, or overexposure to the sun — can help you manage your condition. If you notice early signs of a flare, such as increased fatigue or joint pain, adjusting your schedule to get more rest may prevent a full on flare-up.

Building a support system

Living with lupus can feel isolating, but having a support system can make all the difference. In addition to having a lupus specialist to support your health, consider joining a lupus support group or connecting with others who understand what you're going through.

Family and friends play a key role, too. Educating them about lupus can help them better understand your experiences and provide you with meaningful support.

You don’t have to navigate lupus alone. If you're looking for a partner in your care, contact us to learn more about our personalized approach to lupus management. It’s possible to live well with lupus, and we’re here to help!